People who are living with MBC face many challenges

EUROPA DONNA surveys as well as a significant amount of other research* indicates:

  • MBC is not widely understood by the public
  • Women with MBC often feel isolated, invisible and stigmatized
  • Women with MBC do not all have access to the best and newest treatments
  • Women with MBC do not all have access to treatment in a specialist breast unit with a multi-disciplinary team (MDT)
  • Women with MBC need better / improved communication with doctors
  • Women with MBC often face unresolved professional, legal and financial issues, such as workplace discrimination, loss of job and thus income, and increased medical expenses
  • Women with MBC do not receive sufficient psycho-social support
  • Women with MBC need more support for family matters
  • Accurate data on the number of people living with MBC cannot be found in many countries in Europe and around the world since most countries’ cancer registries (if they even exist) do not have this information. Therefore we cannot evaluate effectively whether those with MBC receive adequate support, treatment and services.

The above list summarises the key issues and concerns about which we need to advocate for and with people with MBC. Issues may vary from country to country and each country will choose to prioritise those which are most important for immediate advocacy action according to their needs.

 

*EUROPA DONNA MBC Survey Results 2016 & 2014; “Global Status of mBC: A Decade Report” by Pfizer, European School of Oncology and ABC3; Mayer L, “Lessons Learned from the Metastatic Breast Cancer Community,” Seminars in Oncology Nursing, Vol. 26, No. 3 (August), 2010: pp 195-202; “Changing the Landscape for People Living with Metastatic Breast Cancer,” MBC Alliance Metastatic Breast Cancer Landscape Analysis: Research Report, October 2014